Friday, 18 February 2011

Introduction

I have been sick since May 2008 and I have found it sometimes very difficult to find out information about my conditions, in particular Pots syndrome. I have written this blog to try and help anyone who is suffering with POTS or Marfans Syndrome. By finding this blog hopefully you will find everything you need to know. I have tried to include everything that I have researched and also tried to give an account of my experience. I would emphasise that the most important thing is not to give up hope and to fight against this illness (in particular I refer to Pots). I am almost better now but I always remember to take each day as it comes and if I have a bad day then I look forward to the next good day. I really hope that this blog is of help to you!

5 comments:

One Jillian said...
This comment has been removed by a blog administrator.
Anonymous said...

I don't know if you still check these comments - If you do a big thank you!

My daughter has been diagnosed with pots and at 6 foot 4 inches I guess Marfans should be more fully investigated.

Just know your blog has helped others

Lynne said...

Thank you so much for this. I have only just seen your comment (it's been a busy year). I really hope your daughter is getting better. Did you find out if she has Marfans. If your in England UCH hospital at Euston is the best place to go. I think Dr Hakim is the consultant you would need to ask for. In relation to Marfans. Hope this helps

Lynne said...

Thank you so much for this. I have only just seen your comment (it's been a busy year). I really hope your daughter is getting better. Did you find out if she has Marfans. If your in England UCH hospital at Euston is the best place to go. I think Dr Hakim is the consultant you would need to ask for. In relation to Marfans. Hope this helps

Alarico Adalbert said...

It is no secret that I have a very deep and personal relationship with God. I have pushed and resisted that relationship this past year through all the bullshit I have had to go through living with Herpes but once again, God is bigger than my stubbornness and broke through that outbreak cold sore and all I had Genital Herpes. For me personally, hearing over and over how I am not good enough has really invaded my mind in the worst way possible. I completely shut down and I was just waking up like is this how life going to end this temporary herpes outbreak “fuck everybody with herpes if you know what I mean” but let's be honest here...
It is cowardly to say no to herbal medicine. It is fear based. And it is dishonest to what my heart wants. Don't build a wall around yourself because you are afraid of herbals made or taking a bold step especially when it's come to health issues and getting cured. So many young men/ women tell me over and over that Dr Itua is going to scam me but I give him a try to today I feel like no one will ever convince me about herbal medicine I accept Dr Itua herbal medicine because it's cure my herpes just two weeks of drinking it and i have been living for a year and months now I experience outbreak no more, You can contact him if you need his herbal medicine for any such diseases like, Herpes, Parkinson, Diabetes, Hepatitis, Syndrome, Cancers, HIV, Epilepsy, Infertility, and any kind of disease & Infections Love Spell,. Email..drituaherbalcenter@gmail.com then what's app.+2348149277967.... My advice to any sick men/women out there is simple... Be Always an open book. Be gut wrenching, honest about yourself, your situation, and what you are all about. Don't hold anything back. Holding back will get you nowhere...maybe a one way ticket to lonelyville and that is NOT somewhere you want to be. So my final truth...and I'm just starting to grasp this one..